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Stanley's Strength

Stanley faced every appointment with a smile. I hid my fear behind that smile. It kept me going, it kept my feet moving, it kept me confident in my son's resilience.

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His Story Isn’t Finished

Seventeen years ago, I was told my baby had half a heart. Today, I look at my son and I don't see half of anything.

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Jaxon’s Journey

I never imagined that 35 years later I would find myself on the other side of the hospital bed watching my own son fight a battle so similar to mine.

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Alfred’s Heart

There is no such thing as a silly question or asking too many times. We need to know.

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My Daughter‘s Story with ALCAPA

For the first time in a long time, we are simply grateful to be able to look at our daughter, hold her in our arms, and know that she is here.

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