Heartbound Voices is a space for stories, not a medical or crisis service. If you or your family need support, here are some places to start.

From Our Founder

Talking to Your Child About Their Congenital Heart Defect and Surgery — a guide covering diagnosis conversations, scars and body autonomy, hard questions, siblings, and more. Pay what you can (including downloading for free); no one is turned away for lack of funds. [Download the guide]

Medical & Educational

American Heart Association – Congenital Heart Defects (heart.org)

Conquering CHD (conqueringchd.org)

Congenital Heart Public Health Consortium (chphc.org)

Financial & Practical Support

Ronald McDonald House Charities (rmhc.org) – housing near treatment

The Ethan M. Lindberg Foundation (ethanlindberg.org) – grants and long-term housing for families

Jamie's Heart Foundation (jamiesheart.org) – travel, lodging, and medical expense assistance

Peer & Family Support

Mended Little Hearts (mendedhearts.org) – peer support for families

SibShops (siblingsupport.org) – resources for siblings of children with medical conditions

Crisis Resources

988 Suicide & Crisis Lifeline – call or text 988

Crisis Text Line – text HOME to 741741

This page is not exhaustive, and inclusion here is not an endorsement of any organization's services. If you're outside the U.S., the resources above may not apply to you directly, please look up local services in your country.